Wednesday, May 9, 2012

inevitable

The glaucoma specialist
The second opinion
or rather
The collaborative
opinion
is to wait
seems like
good news
relieving news
not really.

Waiting means
it's not bad
enough... yet
Waiting means
letting it
get worse
Waiting means
surgery isn't worth
the risk
yet.

Easton has
glaucoma
Easton will
always have
glaucoma
the drops
the surgery
or surgeries
only buy us
time
time until
the next
time.

It seems
surgery
is inevitable
It seems
peripheral
vision loss
is inevitable
It seems
it's just
a matter of
time
a lifetime of
glaucoma.

The reality is
his vision
is already
compromised
it will always be
compromised
it was
compromised
before he was
born
we are just in
for the fight
of his life.

a long journey
a long battle
that I refuse
to give in to
a fight for
the best possible
vision
for my son
because
I can
at the very least
give him
that
he deserves
that.

It makes me
sad
It makes me
angry
It makes me
scared
that this is
reality
that this is
inevitable
but it also
fuels me
pushes me
propels me
and makes me
so proud.

What is
inevitable
is we will
get through
this
one day
one opinion
one prayer
at a time.

Thank you
to everyone
for your
continued
support
I feel your
prayers
they have lifted me
and given me
strength
in this difficult time.

Inevitable
isn't a bad
thing
I can count on
inevitable
and I know
all our love
with inevitably
help Easton

See the Distance.

PS. cute pics
in my next post
promise!   ;)

5 comments:

  1. Amanda - I am so sorry for everything you are going through. I can't even imagine all the emotions you are feeling and how overwhelmed life must be. But you are strong - and Easton is blessed to have you as his mom. He has a mom that will fight for him, even when he doesn't understand how important the fight is.

    And I need cute pics!

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  2. Keep doing what you are doing. You are a fantastic mommy, and that baby will certainly thank you one day. Sending more prayers your way!

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  3. You're awesome!! The best part, the only part that matters...."I refuse to give in."

    That says it all.

    ReplyDelete
  4. Yeah for....somewhat ok news??? Take a moment to breath! Sounds like you have a great team of doctors taking care of your little boy. Have faith in their expertise...as hard as that can be. Can't wait for cute pics!

    ReplyDelete
  5. As is said above, you are awesome! Waiting is hard, I know, but you are such a strong mommy- Easton is very lucky! (Need pics!!)

    ReplyDelete

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