Friday, January 25, 2013

a glimpse

I think
every mom wants
a glimpse
into our child's
for perfection
pure happiness
and any
and all
are made
to protect them
from anything less

I know I can't
keep my children
in a bubble
I know they will
get hurt
sure physically
bumps bruises
scratches scrapes
broken arms!!!
but emotionally
oh emotionally
the saying
sticks and stones
may break my bones
but names will
never hurt me
well that's just crap

I rarely blog
about school/work
I've made a
conscious decision
to keep it separate
from my personal
yet public
emotional story
well... the two worlds
collided today
and I need to

this week was
the start of
a new semester
at school/work
and for me
the art teacher
who teaches
20 week courses
I got to meet
200 new faces
and began to be
a part of
200 new stories
in my attempt
to identify my students
with IEP's 504's
or any other
necessary medical info.
I discovered
I have 3 female students
who have a recorded
EYE related concern
extreme vision correction
there are probably more
but these 3 lovely ladies
have parents who
want it to be known
bravo to them

so naturally
being the sensitive
I approach the girls
and begin to swap
EYE stories
as a way to connect
as a way to reach out
as a way to get
a glimpse
oh boy
let me tell you
imom love
is fierce
first of all
I think she
could feel it
I think she
could trust it
and thirdly
she is now
under my wing
imomma bird
done put
baby ibird
right in the nest

a 6th grader
and how ironic
for my instagram
I posted my very own
6th grade school pic
last night
it seriously
must be fate

she proceeds
to tell me
she wore a patch
in school
from K-4th grade
says it was hard
the kids were rough
teased her
picked on her
only saw the patch

my first punch
straight to the gut
EYE wanna cry
yes for her
yes for Easton
yes for all children
who don't deserve it
who are more than
what people only see
on the outside
but I don't
she is strong
she is rock solid
telling her story
like a solider
like an old soul

she proceeds
to tell me
even now
they still continue
call her "captain"
as in captain of
a pirate ship

my second punch
straight to the gut
EYE wanna scream
where are they
let me find them
let me see who
is captain now
but I don't
I tread carefully
slow steady 
build trust
encourage safety

does that hurt 
your feelings
do they know
it hurts
your feelings
have you asked
them to stop
have you shared
this with anyone
does mom know
can I talk to them
can I tell your
school counselor
can I help you

she agrees and
her stone cold face
her rock solid wall
begins to open
her light from within
begins to shine
and I can see
the sparkle in her

oh dear god
I have a class to teach
we are 15 minutes
into class
on the second day
and my heart is racing
blood is pumping
through my body
so quickly that
my body is shaking
EYE wanna cry
EYE wanna scream
EYE wanna hug
EYE wanna help
EYE wanna hope
EYE can make
a difference

the bell rings
the students leave
I have a 40 minute
free period
and a gazillion loose ends
to tie up on a Friday
I walk
out the door
down the hall
straight to the
school counselor
with every step
don't cry
don't cry
be brave
be brave
this is not
about you
this is not
about you

I get to her office
I knock on the door
she says, you look like
your gonna cry?!
I take one step
through the door
bend over
put my hands in my face
and fall apart
poor woman has no clue
I just got
a glimpse

Wednesday, January 16, 2013

EYE wanna

EYE wanna
as in
Easton can now say
I wanna hide
I wanna run away
I wanna don't like it
I wanna don't like the patch
when it comes to
all things EYE

at the beginning of the day
EYE wanna... drop
EYE wanna... contact
EYE wanna... patch
at the end of the day
EYE wanna... patch
EYE wanna... contact
EYE wanna... drop

EYE wanna
is now the phrase
of 2013
and frankly
EYE wanna don't like
much of it either
that is the EYE
and 2013

we have been sick
we all
have been sick
literally with
cold and flu season
and with the EYE
and just when
I was beginning to think
the winter blues
were going to get
the best of me
EYE found a reason
to continue to
see the distance

Easton has pretty much
had an EYE apt.
every six weeks lately
volleying between
vision treatment and
glaucoma treatment and
keeping in mind
we are saying farewell
to our original PO
next month

in my attempt
to begin to transition
from our glaucoma PO
to him becoming
our permanent PO
I simply stated my
parent perspective of
EYE wanna
the absolute best
possible vision for my son
EYE will do
whatever it takes

his reply was
increase patching
very well then
and 6 weeks ago
we went from
6 hours a day to 8


fast forward to today
with Easton's
EYE wanna attitude
and my
EYE wanna attempts
we went in feeling
and honestly somewhat
but never the less
ready to ride this
roller coaster

Easton sat on my lap
contact in
fresh off a nap
a car ride snack
and some snuggles
from the waiting room
we reviewed the
EYE chart pics
started large 20/400
total cooperation
total comprehension
started getting smaller 20/100
soft encouragement
and smaller 20/80
astonishing excitement
and smaller 20/50
tears brewing
pride burning

for the first time
his PHPV
cataract removal
contact lens wearing
with glaucoma
is seeing
absolutely amazing

our PO attributes
90% of the success
to the parents

it's working
we're winning
don't give up
keep going

this is just
what EYE needed
to see
to hear
to feel
to know
right now
bring it

as much as
EYE wanna don't like it
I realize
EYE just want
I need to know
this effort
my effort
is making a difference

and so much so
this re-active PO
now wants to be
with reassurance
that his vision gaining
with sleeping glaucoma
does in fact have
a healthy optic nerve


insert fast moving
roller coaster
ride the high wave
and take a dip turn
to the hospital
for an EUA
exam under anesthesia

yup, you heard that one
he is doing so well
that we now want to be
extra sure
extra careful
that glaucoma doesn't
therefore Easton will have
an EUA within
the next few weeks
date to be determined


oh this journey
I just don't know
how to describe it


EYE wanna don't like it
EYE wanna don't like the patch
EYE wanna run away
EYE wanna hide
EYE wanna hope
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