Monday, January 9, 2012
Settling in
The New Year is
settling in
and so are
the new feelings
of living with
glaucoma.
Admittingly
it took me
a moment
to process
all that came
with 2012.
There were a few
sleepless nights
a few moments
of panic
worry
fear
where does glaucoma
begin
and a toddler
wearing a contact
and a patch
end?!
But on the other hand
there were also
moments of strength
of encouragement
and determination.
Many thanks
to those who are
praying
praying for my baby boy
that his vision
isn't stolen
taken away
by more
random
circumstance.
Sometimes I feel
so helpless
that his Eye
his glaucoma
is the one
in control
so I decided to
reach out
make all this worth
something
at least
feel like that
anyway...
I submitted a post
to Little Four Eyes
a great website
for parents of children
with vision concerns.
My most popular post
Dear Easton
to me
it speaks
to every parent
who knows
what is best
for their child
but also knows
that the best
isn't always
the easiest.
It made me feel
better.
I also learned that
January is
Glaucoma Awareness Month
who knew?!
so I took it
as a sign
that I did
the right thing.
I hope it helps
someone
feel better.
I also read
the last sentence
of a random book
sitting on the coffee table
at my Mom's house
it said
the only thing a human
needs to do
is wait and hope.
Random?!
So in the light
of staying positive
I will wait
and
I will hope
that in the end
what will be
is meant to be
obviously
I hope
Easton will see.
Tuesday, January 3, 2012
glaucoma
Oh boy
my boy
my sweet
baby boy.
I don't
even know
where
to begin.
I could confess
and say
I wrote my last post
on purpose
so that
this post
wouldn't be
the first.
Cue sad
overly dramatic
music...
is it over kill
if I say
it all started
when we lost
yes, another contact
again
the night before
the appointment.
It was our
longest lasting one
over 3 months.
It's gone
along with
the wasted hours
we spent looking
for it.
wear's the contact?
wear's Easton?!
Over it.
Over all of it.
There is a little
bit of everthing
as I write this
anger
sadness
fear
anxiety
pride
relief
reality
He has Glaucoma.
Well he has had
Glaucoma
wait
I don't even
want to capitalize
that word
I hate it's power.
His glaucoma was
under control
until now.
So his numbers
right
wondering
waiting
for that number
there were a few
lowest... 28
highest... 38
remember 40 is bad
so we are treating
him.
eyedrops for now
eyedrops now
for a long time.
possibly surgery
most likely surgery
if the numbers
don't go down
within 2 months time.
go back
in 1 month
to recheck
I'm loosing
hope
but there is a chance
that just drops
will help.
I have to say
Easton was
again
a Rock
His vision
a balance
that we can not
control
but he was so
so strong
he endured.
The Dr. said
that other Dr.'s
don't believe her
when she talks about
his case
and how cooperative
he is.
She was happy
and confident
that she didn't need
to have an exam
under anesthesia.
There was other
good news
his optic nerve
showed little
if any
damage
so we caught it
in it's very
early stages.
He is not
in any pain
there is nothing
he did
we did
to start
it
but it's here
it's reality
it's 2012
And we will
continue
to move
forward
together.
I'm learning
when life
gets messy
make a mess
my boy
my sweet
baby boy.
I don't
even know
where
to begin.
I could confess
and say
I wrote my last post
on purpose
so that
this post
wouldn't be
the first.
Cue sad
overly dramatic
music...
is it over kill
if I say
it all started
when we lost
yes, another contact
again
the night before
the appointment.
It was our
longest lasting one
over 3 months.
It's gone
along with
the wasted hours
we spent looking
for it.
wear's the contact?
wear's Easton?!
Over it.
Over all of it.
There is a little
bit of everthing
as I write this
anger
sadness
fear
anxiety
pride
relief
reality
He has Glaucoma.
Well he has had
Glaucoma
wait
I don't even
want to capitalize
that word
I hate it's power.
His glaucoma was
under control
until now.
So his numbers
right
wondering
waiting
for that number
there were a few
lowest... 28
highest... 38
remember 40 is bad
so we are treating
him.
eyedrops for now
eyedrops now
for a long time.
possibly surgery
most likely surgery
if the numbers
don't go down
within 2 months time.
go back
in 1 month
to recheck
I'm loosing
hope
but there is a chance
that just drops
will help.
I have to say
Easton was
again
a Rock
His vision
a balance
that we can not
control
but he was so
so strong
he endured.
The Dr. said
that other Dr.'s
don't believe her
when she talks about
his case
and how cooperative
he is.
She was happy
and confident
that she didn't need
to have an exam
under anesthesia.
There was other
good news
his optic nerve
showed little
if any
damage
so we caught it
in it's very
early stages.
He is not
in any pain
there is nothing
he did
we did
to start
it
but it's here
it's reality
it's 2012
And we will
continue
to move
forward
together.
I'm learning
when life
gets messy
make a mess
We will
pick up
and
move on.
This is part
of our journey
See the Distance.
This is part
of our journey
See the Distance.
Sunday, January 1, 2012
Happy New Year
I know
I do
this often...
look back
but it helps
me gain
perspective.
And now
the present
has me
thinking
of this year
to come
the future
what will
it bring

Smiles
I hope.
We have
grown
in so many ways
but somehow
we landed
right back
to where
we started
same spot
same wall
a year later
together.
As always
with whatever
the new year
may bring
we will share it
together.
Easton and Azalea
wish
everyone
Happy New Year!
Friday, December 30, 2011
Holiday Recap
Better late
than Never
so here goes
a Christmas post
one last time.
Christmas Eve
was met
with some old
traditions...
these lights
have been bubbling
on my Mom's tree
since before
I was born.

and some new...
watching my children
attempt, key word
to open
their gifts.
I will spare us all
with every single photo
but BEFORE openning
pretty much every gift
both of them
had to
play with
pick up
and
sit on
every single gift.
Then they would
attempt, again key word
to unwrap
someone would assist
make an initial rip
here or there
you know
the kids would follow
continue with the rip
but once they had
a piece of paper
actually in their hands
that was it
game over
piece of paper
is way more fun
than unwrapping
a big box.
Duhhh
So we went with it
carried on
openned and played
openned and played
lots of laughs
as evident in
this year's
Christmas Family Photo
hey you can't win em all
This was an attempt
at getting the two of them
to actually sit, ha
for a photo together
after this quick snap
Easton then catapulted
himself right out of the chair.
Once we got home
Buddy, the elf
made his last appearance
for the Holiday Season
then off to the North Pole
he went
till next year.
He might be renamed
next year?
If the kids
will be able to...
we will see.
No Buddy
you are NOT a
Cottonheaded Ninny Muggins!
Christmas Morning
arrived with excitement
before heading to the tree
both of them had to
ride the new turtle
they got the day before.
We had to put a
Boppy pillow
under it
so Azalea's lil legs
could reach the floor.
Openning gifts
was a bit of the same
play with box
play with paper
kinda unwrap
play with more paper
eventually
play with new toy.
Easton got a new
Patch Pal
Patchy, the Pirate
I have a feeling
there is more
of this to come.
Among many things
Azalea got a scare
from Daddy's new
bear claw slippers.
Too funny!
She is just now
getting more comfortable
being in the same room
with
them.
And Mommy
got her shot!
Love it.
Love them.
Love the love
they share.
Christmas Day
ended with more
tradition
more family
and one last
family photo.
I'll take it.
I'll take all of it.
We had a Merry
Christmas.
Friday, December 23, 2011
Chirstmas Magic
When he looses
his contact
again
for the gazillionth time
it feels like
it's never
gonna let up.
You check
his clothes
his crib
his highchair
the kitchen
the living room
the hallway
under toys
and at some point
you just
stop
but the funny things is
your instinct to look
really doesn't
stop.
So I'm eating dinner
I look down
and there it is
a little tiny shinny spot
on the carpet
in the middle of the house
where the most traffic is
where we all looked
and walked over
so many times.
Christmas Magic
the Contact Fairy
who knows
but we got it
back,
I still believe!
So Grandma and I
packed the kids
in the car
while Daddy stayed
home and baked
Christmas Cookies.

We were feelin it
that Christmas Magic
so off to see
Santa
we went.
It was a perfect night
cold but not freezing
the line to see Him
was just long enough
so we waited.
She professionally
people watches.
He goes
He sees
He touches
They were perfect
It was perfect
The suspense
was building
the children
were buzzing.
We arrived
on his sleigh!
The jingle bells
were jingling.
The little boy
was touching.
The little girl
was watching...
a train up above.
And then...
I think
everyone has
a memory
a feeling
a sight
a smell
of that momemt
your moment
with Santa.
To bring your child
my children
to this moment
and see
it happen
for the first time
the Magic
is undeniable.
He who
doesn't go first
who is
oh so shy
was the first
was not afraid.
And then
you start
to believe
even more
in that Magic.
She who
normally leads
followed her
brother's lead
this time.
We were there
in His presense.
Christmas Magic
Pure fun
that is all
I can say.
It was
pure fun!
We came home
to the smell
of freshly baked
Christmas Cookies.
Can Christmas
get any better
than this?!
Let's just clarify
one last thing...
yes, he bakes
but I frost! ;)
Merry Chirstmas!
Wishing everyone
a bit of that
Christmas Magic!
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