Eye Report

Easton had an Eye Apt today.
Very GOOD news
his eye is stable.
The pressure in both eyes
was similar and low,
no glaucoma!
His retina and optic nerve
looked good.
The stalk thing
from his PFV
was not an issue.
He has a clear line of
vision through his eyeball.
Yayyyyy!

He is to continue
wearing his contact.
He is to continue
patching about 6 hours a day.
His contact size and prescription
did not change this time.
We go back
every three months.
Dr. thinks next time
contact will change.

Soooo we are down
to two contact back ups.
Yes, we lost yet another contact
the night I got home
from amazing yoga
I tried to channel
positive energy
and just let it be.
If we use up
the remaining two
before the next apt.
we are to call the Dr.
before getting more.

I started asking questions  :)
Will he EVER be a
good candidate for a
permanent lens implant?
aka. no more daily contact
answer... probably not.
Slightly disappointed.
Well... very disappointed.
His PFV left his eye
so abnormal that
he lacks the eye structures to
safely anchor the lens.
Dr. feels we can
revisit the possibility
when he is around age 8.
But at that point
we have a better chance
hoping for new technology
than any change in his eye.

Next question...
when will he get glasses?
Right now the contact
allows him to see 20/20
about 4 ft at the most
in front of him.
When he needs to see further
he will need glasses
and his contact.
So when he is about 3 or 4 years.
Starting school
seeing the chalk board, etc.
He will get glasses.

Next question...
Will he then wear glasses
forever?
Yes.
He will need to wear
his contact for near sight
and his glass for far sight
to see out of his
"bad" eye
forever.
Now you can see
why I was hoping
he could get the
permanent lens implant.
One less piece of
vision equipment.
By the way,
even with the implant
he would still need glasses.
The perm lens is only set
to one distance
either near or far.

Next question...
Will he always have to
patch for half his wake time?
aka. 6+ hours.
In other words,
will he be patching at school?
Not necessarily.
His patch time
could be a minimum of 4 hours
around the age of 3 or 4.
Thus he could patch
after school.


I am happy.
I am grateful.
This was a good visit.
Dr. says Easton
is one of her
most successful cases!
But there is still
a knot in my stomach.
Going there
hearing the facts
just makes it all still
feel real.
And when it feels real
there is still a
long road ahead,
no turning back,
the chance that things
could change,
and no magic anything
to make is all
better.

I'll get over it though.
This is a place
that is very familiar.
I try not to let myself
come here often.
This is were I cry a little
and pray for my baby boy.
And then I...
count my blessings
blog about it
and read other blogs
who know exactly
how this feels.

During the office visit
Easton was a champ.
No major meltdowns
Dr. could get to his eye.
He participated in all the
look here, look there tests.
Even putting the contact in
went well enough.

I told the Dr. about
my online eye buddies.
How in the beginning
all this felt so isolating.
And how the blog community
has saved my sanity.
I wanted to make sure
if she had future parents
she could point them
in a direction
of support.
I told her I was going to
blog about today's visit!
I think she is reading this
right now!
Hi Dr.!  :)

Now back to
Seeing the Distance!