EYE wanna

EYE wanna
as in
Easton can now say
I wanna hide
I wanna run away
I wanna don't like it
I wanna don't like the patch
when it comes to
all things EYE



at the beginning of the day
EYE wanna... drop
EYE wanna... contact
EYE wanna... patch
at the end of the day
EYE wanna... patch
EYE wanna... contact
EYE wanna... drop

EYE wanna
is now the phrase
of 2013
and frankly
EYE wanna don't like
much of it either
that is the EYE
and 2013



we have been sick
we all
have been sick
literally with
cold and flu season
and with the EYE
and just when
I was beginning to think
the winter blues
were going to get
the best of me
EYE found a reason
to continue to
see the distance



Easton has pretty much
had an EYE apt.
every six weeks lately
volleying between
vision treatment and
glaucoma treatment and
keeping in mind
we are saying farewell
to our original PO
next month

in my attempt
to begin to transition
from our glaucoma PO
to him becoming
our permanent PO
I simply stated my
parent perspective of
EYE wanna
the absolute best
possible vision for my son
EYE will do
whatever it takes



his reply was
increase patching
very well then
and 6 weeks ago
we went from
6 hours a day to 8

 

fast forward to today
with Easton's
EYE wanna attitude
and my
EYE wanna attempts
we went in feeling
deflated
and honestly somewhat
depressed
but never the less
ready to ride this
roller coaster

Easton sat on my lap
patched
contact in
fresh off a nap
a car ride snack
and some snuggles
from the waiting room
we reviewed the
EYE chart pics
started large 20/400
total cooperation
total comprehension
started getting smaller 20/100
soft encouragement
and smaller 20/80
astonishing excitement
and smaller 20/50
tears
tears brewing
pride burning

for the first time
ever
his PHPV
abnormal
cataract removal
contact lens wearing
with glaucoma
EYE
is seeing
20/50
absolutely amazing



shocked
surprised
our PO attributes
90% of the success
to the parents
patching



it's working
we're winning
don't give up
keep going

this is just
what EYE needed
to see
to hear
to feel
to know
right now
2013
bring it



as much as
EYE wanna don't like it
I realize
EYE just want
hope
I need to know
this effort
my effort
matters
is making a difference



and so much so
this re-active PO
now wants to be
pro-active
with reassurance
that his vision gaining
EYE
with sleeping glaucoma
does in fact have
a healthy optic nerve

 

insert fast moving
roller coaster
ride the high wave
and take a dip turn
to the hospital
for an EUA
exam under anesthesia

yup, you heard that one
he is doing so well
that we now want to be
extra sure
extra careful
that glaucoma doesn't
win
therefore Easton will have
an EUA within
the next few weeks
date to be determined

 

oh this journey
I just don't know
how to describe it

 

EYE wanna don't like it
EYE wanna don't like the patch
EYE wanna run away
EYE wanna hide
and
EYE wanna hope